“There are about 400 special neurologist in Spain, less than 6.5 million children”

Often there are about how many children in Spain with neurological or disorders?This is complicated because the statistical figures differ greatly. In Spain, there are 6.5 million children up to 14 years, and frequent frequent disorders or diseases are 40 to 60% of children, sleep disorders (about 23% of children), operating disorders – ICDS – (10%) and ATHT (7%).

You would say so ‘disabled’?If we go to the most serious problems, we see that the foot -epilepsy is very widespread, which affects about 40,000 children in Spain (4 to 10 per thousand), the Palylic cerebral It affects 2 out of 1,000, autism, talking about one of 100, but there are statistics that talk about one in 36; And DisorderIt is estimated that it will affect 1 to 3%. With these data, a significant number of children from 0 to 14 years can reduce the evaluation of data for a neurologist at a time.

There are previously unnoticed disorders, which have now been found more than Adhd or autism. In the case of the latter, there is also talk that its diagnosis has been multiplied by four in the latest decades. Are you better or really more cases?After all, because we are well aware of the problems, they identify each other better and more enrich in the diagnosis. There is more understanding of society and identify before. On the other hand, in the particular case of autism, the diagnostic criteria are extended, so many people outside the spectrum are now considered tea 1-, now they are considered autism, which increases the number of diagnostic diagnosis.
In addition, the highest availability of services, more resources, and more support plans … than a few years ago, they are no longer rejected by families. Also, there are theories, which are not highly proven, they are increasingly related to the age of the parent or other epigentic situations.

Has the attitude to these types of disorders changed a lot?Yes, and much has changed, the approach is not neurobiotic, but other health and social -class experts, such as psychiatrics and psychologists, primary pediatricians, early care professionals and educators participate … In addition, thanks to more knowledge and consciousness.

What is the role of a neurologist in this approach?After all, it is important to guide the functional diagnosis, especially when we talk about neurological developmental disorders: Do guidance physical examinations, and can determine what clinical trials should be done to achieve the diagnosis, we participate in pharmaceutical therapy and coordinate the rest of the health professionals and education.
In addition, in my view, it is very important to prepare a medical report with the diagnosis of functional or syndrome, because in disability, pro -one -type schooling is already opening the doors for his family to demand a school or another … That is why we should try to create a good statement around the child’s functioning diagnoses. On the other hand, we need to take great care of the change in adults when the child is old.

Many times, in that change, they go to mental health and mental medicine. Because?Yes, it is true. In many cases, a neurologist and/or a child psychiatrist who follows these children, when they go to adolescence, they do not refer to an adult neurologist, but if they do not present the child’s leg -epilepsy or other complications.
Ideally, there were neurological units, all professionals are dedicated to brain and neurological development and participate in a wide variety of groups, but the truth is that most of these teams are not set up in the hospitals of all autonomous communities. Since neurology has many pathogens to dedicate their efforts, they are now not getting these families.

Since the diagnostic area is similar to them, they have to give that first ‘bad news’ …That’s right, because the diagnosis must be transferred to the family, we have to do carefully, because it is often associated with serious, genetic diseases, which can be progressed … In addition, both the child and the family must be.

The role of a neurologist is very important, accurately, important in diagnosing many diseases, as most of them have genetic and child damage. How do they get from neuropathia to the fact that taking into account a large number of rare diseases is the beginning of the diagnosis?This is true, many rare, genetic diseases … they are exposed in childhood and begin to study with the neurological clinic, but they must follow it from other features, because the impact is very universal … thus the diagnosis is old and the pre -genetic improvement is very early. Also, the newborn child’s screening (heel test) can be detected further with it. However, this is not always the case as we want, and that this screening is the same in all communities and that it includes all possible diseases. All genetic studies, such as the mass order issue, have more access to all autonomous communities and allows you to achieve diagnoses that cannot be obtained a few years ago.

The results of a genetic study are not bonded now, can they be a few years later?Yes. Therefore, the re -evaluation of genetic studies must be renewed every three or four years, because genetic results, worldwide, genetic results vary. For example, you may have a genetic variable, which is now considered uncertainty or what it is worth it in a symptom, and it is known as a pathological variation after a few years.

You have been the president of the Federation of the Association of Early Care Experts in Spain for many years, except for the Senf’s Directors Committee. Why is this too important to join the neuropedia?This is essential, because in many difficulties we see, especially in neurological developmental disorders, we can only provide the possibility of a diagnosis and pharmaceutical therapy from medicine, but we cannot provide a disease. Therefore, the child and his family they need are a companion to a multi -faceted group of early maintenance, a group of fully integrated professionals with education and health. This is the best way to achieve its maximum ability, because there are many skills behind every child and their family with disabilities, and it is very important not to see it.

We know that in early maintenance, in Spain, there are many flaws, many waiting lists, and the inequality between communities … but what happens to the attention of the neuropedic?Well, we have several months of waiting lists for advice, and unfortunately we have many imbalances. There are communities with a good network of neuropadiatrus, and other classmates are scattered, they are fewer and cannot work on the network.

Does Spain have enough neurospadiadras?We think they still need them from the Senepp. By 2022, in 2022, we are dedicated to 400 experts, but not everyone is dedicated to neurobitia, because sometimes they have to create pediatricians in the guards, especially in hospitals, especially in hospitals that are not mentioned in hospitals, and many more.

How can you improve the situation?Neurobadiatri is attractive to students, but you need to take steps to improve it like special training. The child’s specialties in Spain are not recognized, so most of us are neuropathiatras we are trained by the pediatricians, but there is no special title that recognizes it, that is the struggle we have from Senepp.
Neuropadia is the most needed, where you need to know about many problems such as neuromegen, physiological, and genetics … so recognizing the excellence will ensure uniform, solid training, allowing pediatricians to distribute pediatricians in a very balanced way, improves care and equality in care.