Children with autism have pointed it up Lack of information, uncertainty of treatment The main difficulties they face in the process of diagnostic and attention are impact on everyday life.
This is marked by data released Alcarus In case of World autism awareness day. The company has analyzed the responses collected among the families of patients from the center with the intention of seeing important difficulties.
This analysis indicates that more than 60 percent refers to families Most important obstacles during diagnostic activity The uncertainty of autistic spectrum disorder (ASD) is a shortage of information and the type of proper treatment.
Similarly, the analysis of the data of families highlights the difficulties that arise in the family environment after the diagnosis. In this sense, imTea Agreement in everyday life Reducing personal time is the most common response among participating families.
“One of the greatest difficulties that families face Small information they receive during the diagnosis “The uncertainty is unknown,” said Sheila Alcaras, co -director of Alcaras.
In addition, this shows impact on everyday life: “Many fathers and mothers transmit that feeling There is a chance of retirement24 hours, every day, absorbing without rest or disconnected. “
As for central experts, this situation is a direct effect of FAGeneral resources To pay attention to the minors with the AST and to be an integrated companion to their families. “There are no embracing camps, or non -non -functioning, and they focus on them, and these types of resources not only benefit the child, but also provide the rest of the families,” says Alcaras.
Educational centers that have not been created
As for the education sector, two major challenges have been identified by families: The Lack of little training and support of teaching staff at AST Or specific treatments within the school environment. Both problems were pointed to more than 60 percent of the center’s users.
“Fortunately, there are a lot of sensitive teachers to take these types of challenges seriouslyLeaves many helpless families In most cases, “says the psychologist.
“Our analysis carried out in recent years confirms that Autism must be in a detailed manner: Not only does every minor require specific and customized attention, but also a standard and deep attention on the family, it needs support, guidance and care, ”said Alcaras.
Finally, the collected data reflects a reality shared by many families that reflect not only a diagnosis but also a reality that comes to the center Emotional companionAnswers to practical tools and many questions that arise in the way. “
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