He met Pako Pepe for five years. He knew from his rare neurological disease, knew his needs and knew that he had no treatment. Pako has since been working in Telephinica for 42 years. He started many people in the Apprentice Operator without study. The life of the telecommunications engineer who worked in Telefenica was taken.
He married Kovi and had two children. The rest of her life worked only in a company: Telefenica. Did all the things done. He had a specially designed leader as a perfect mathematician. That is why Pako, Francisco Fernandes Fernandez ‘Controller’. He hated the calculators and hated the lack of control. When I met him, Pako was nicknamed the “Mongutos” pet, which is a lifestyle of the former talented account. It was.
In 2017, 52 years later in Telephine, the employee who worked on the operator for more years was retired.
Pako met Pepay in 2016. He always wanted to help him. When we think about riding Questionnaire A year later we returned to Pako to become a ‘controlled’. He was 72 years old, and he told me yes. Some men are workers, firm, and humans like Pakto. He never charged the euro. I dedicated all the time in the world: “Don’t worry Bilar. The foundation helps to run my head.” Even in PACO centers control the income and costs.
In September 2019, Pako began to fail the best motor skills. He went to the neurologist. The variation of ELA was soon detected. Ela. Pako decided to fight. He never talked about his illness, and until 2022, when the wheelchair and oxygen were already replaced by the bed, he came to the basement several times. He brought the computer with all his accounting tips and gave “classes” to external accountants and auditors. It is unique.
Sideo He died yesterday, March 25, 2025, after fighting the disease as a jar. Until last week, I wanted to control the sending of the Foundation’s allies. I could not eat, I could not breathe, and I was certainly not able to move, but the strength to capture life was already assumed that its “responsibilities” did not understand that it did not voluntarily control sending money.
“He never talked about his illness. When the wheelchair and the oxygen were already replaced by the oxygen until 2022, he came to the foundation every week,”
“Billar, after finding neurologists who heal the children of the foundation, do you think there will be someone who knows mine?” He asked once. What is your side? I asked him. “This is peppe -like neurology.” I can’t find it, even if we tried to make it impossible from the foundation, what’s in our hands Find those heroes, researchers, doctors, scientists We will help you understand how the central nervous system and the brain function. How to cure especially.
Congress of representatives Six months ago, the ELA approved the law. The law is without funding. They miss 200 million euros to help 5,000 patients Every year they are found to have Ela. They are not shy.
Pako, the hero of the Amazing Foundation and Peppe, I know that my son has an example of a tireless fighter, The word to see whom to see a honest, humble person. We can never thank Kovi for lending to his children and his grandchildren for lending to the volunteer pako, the backbone of the Ammal Foundation. Relax in peace.
