Two patients with degeneration and electrification diseases, Alvaro Gonzalez and Fran Rabal were able to collect More than 25,000 signatures in Change.org To ask a “Clear and effective“ protocol ” It guarantees the survival of people with this type of requirements Blackened Like Monday last week.

“I am afraid of the darkness of the other day. We need to confirm that If we remain without electricity, the electrified persons will be safe now or in the future. We have not been abandoned because we were at this time, ”said Gonzalez, who is experiencing Duchene’s muscle dystropi, after pointed out in his request that he abandoned the information that day.”

This disease causes progressive degradation of muscles, including respirations, which is why it is currently needed Connect to the respiratory tool From time to time, in the future, he has recognized that he should depend on a ventilation machine for 24 hours.

“We ask the Ministry of Health Emergency effective protocols for electrification persons: Safe places in hospitals or health centers to provide energy to our medical devices when recovering power supply. And clear signs of what to do in the event of blackout. How to communicate emergencies, where to go to electricity, “the text says.

Rabal, who is suffering from the same disease, said, “If it does not have his respiratory tract, he will not be here.” It confirms it He lived in the dark with darkness and without any information for twelve hours, Electromagulation indicates the impact of persons, which is why this request is combined.

“Monday was to remind us of how vulnerable we were in emergency situations. For a multi -electrified persons, this is a terrifying moment. Now they live with the constant fear that another long -term blackout may spend their lives … ”Then they lamented that a woman left oxygen and died during the dark. “

This situation is not just for those who have degradation, but because Oxygen machine may be required in pneumonia or other pathological cases. “Unfortunately no one is safe. The next time you can be yourself or relative. Don’t let this forget this” concludes the request You can sign this link.

(Tagstotranslate) National Health (T) Blackout

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