When he received the message that changed the course of his life, IARA MANTIENAN BúA I was 30 years old, and as a tense reporter in the conflict areas, the serious collection of experiences and more to count. At the time he knew he had a Cancer Is considered Ultrarao. Due to the lack of treatment options and studies on his disease, he decided to take the regime and seek to seek his journalism industry information and responses, and for a decade, he has witnessed his war character, opening the roads and testing them for others with similar events.
In recent months, the setbacks have occurred, their condition, now criticism, and many cerebral metastasis have worsened. But Ira, far away to surrender, Continue fighting in search of Kura Also, as a tireless journalist, he is documenting his story, and now he shares a telephone conversation with ‘EuroNius’.
Ten years ago was found to have a type of Sarcoma Ultraro (known as Mikoid Extragoma is Contrasoricoma) which affects a person between each millions. It began to be a tumor on the right leg, and he noticed when it made a statement in Egypt. After the diagnosis, he had to leave his home and business to return to his hometown of La Koruna (Calisia, Spain’s Northwest) to focus on his redemption.
But his Press office He didn’t leave her. On the contrary, he explains that he gave him “other mirrors to see the world” and “saved his life.” “As a war reporter, you know how to gather information and how to move, it has earned me a lot to go with my Ultrarao cancer,” he says.
For many years, he documented his actions and examined and examined the therapies Lack of specific studies and treatments For your illness. His firmness led to the Sarcomas Association Assistant Group to Find (Work.
Cancer stretches up to the brain
But. There they told him to have a He bleeding They hurriedly directed it “life or death.” The move went well for ten days, but in the middle of April’s life, his life gave another twist when they told him when they told him Six metastasis in the brain.
Cancer has been violated Hematoyensfallic barrier; However, he did not receive the treatment he received. Now, it is still uncommon for an ultraroro to be a sarcoma, as he explains that only 15 cases have been reported in the world. After this news, the first predictions pointed out that he had little time in life. Cancer is spread through their lungs, pancreas and brain. But Ira in her fight: “They gave me days. I hope to cure this disease.”
Faced the “complex” of his fighting system
A struggle to run it from Bruce with a “site” in the health system, because it keeps its way of decentralizing medical service in Spain by autonomous communities, he regrets. It is currently allowed in Madrid San Carlos Medical Hospital After being obtained from the Caliaia, by a protocol that attracts attention to one of the seven reference centers for the Sarkomas in Spain. But the Descendant It is not mandatory from autonomous communities or can be carried out with delays.
“To be the ideal Single health Or that Descendant Was to the center of the note CompulsoryThat is why the Asarka is struggling, the “association was established, they did not have to fight it”, but by the law, any sarcoma patient is treated at a reference center. Today it depends on whether communities are obtained from you, a cancerist … and many lives are lost, ”he warns it, he warns it Rapid character in descendants is essential. He also points out that the hospital in La Koruja is “always doing well” and accuses the difficulties of the complexity of the organization. So, he says that “a health” is not just the state level But European.
“If you go to a special center, they can extend your life“Ira’s brother, Jose Ramon Mandinan, says,” Ira, who worked in Germany and asked for leave in Spain. ” As these procedures are done quickly, the patient’s life is less likely to be extended, ”he says.
The journalist and expert patient
Again, in this case, the newspaper skills helped Irah, but now she wants to make it easier for himself Information work. Jose Ramon says that he has already knew that there was another different option in a reference center in Madrid, “he said,” La Corujah should not be in the treatment of immunosuppression, “says Ira, and Ira uses her press tools, and” always three steps to collect all possible information “.
Something that connects to her figure PatientAnd it says “a revolution,” in which it is “not only doctors but also patients.” The idea is that with their efficient approach, these are properly recognized in their own illness and the role.
However, the last length of the road was not easy, as his brother explained: “We had to do what we had to do to Madrid because we had to do it because it was to get it to get it She had to pay her own medical ambulance From La Koruja to almost 4,000 euros of its own pocket. ”
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Currently, Ira receives a treatment Connect chemotherapy with immune treatmentBut you read new options like you Car-di cell therapy Deposit of confidence in the development of the trusted Therapeutic vaccines Against cancer.
“The problem is that the entry Clinical trials The most common cancers are selected, not like my sister, ”says Jose Ramon. At this time, Messenger Horn, who has identified all kinds of cancer, plans to launch Russia (in principle within months).
Meanwhile, he maintains his daily struggle with a sense Gratitude San Carlos Medical Hospital (his “Hero”), or Dr. Campello and a Koruna (Suk) University Hospital, Dr. Camplo and Manager Louis Verde.
Although he sees “against everything”, Ira does not hesitate to share her goal: “I want to heal from cancer Help you find cancer For all patients. Although cancer is in the brain, they predict the days of life, there is very little treatment in the world with 15 cases. “A goal of testifying the attitude of guiding its path is that the IARA briefly briefly with a goal:” Forced, continuously, never abandon. “
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