Auguston Campos 42 years old He is detected from 3 or 4 years NeurofyphromatosisThey are a group Rare diseases They are characterized by prognosis for formation Harmless tumors around the nerves and skin.
There are three types, 1, it is one of the Augustine, which is very frequent, and it is a rare disease, because it is one of the most common things Affect one of 3,000 peopleS, Auguston explains that “Type 2 and affects one of the 45,000 of Schwanomatosis.”
The disease, which is inherited for 50%, has many manifestations, “in my case it is considered ‘Novo’, is not inherited. I have been diagnosed with 3 or 4 years. They have doubts that something has happened until then, because I have many things like tolerance, but they don’t know where it came from. There are people who affect them very seriously Already others are a little less serious in my case, but they may have enough problems, ”he says.
In his case, even though he has some obstacles, he has allowed him The most autonomous lifeBecause this is a part of a small percentage of people, because only one of the three of the rare diseases, who have a job, reaches it only one of the three, “I emerge in many ways. I have nistaghmos. I am not well focused. This is one of the first things that attracted attention. I have affected psychomotor skills… I always need speech therapy, physiotherapy support … “
A full labor insertion
Neurofherromatosis and With the highest effort.
As for his department’s request, he did not cost him to find a job. In fact, your current company, Chopra Speria, He has been in many positions for 14 years and has been“I know that I am an exception. Those figures say that this is very difficult, but I have to say that I have no problem finding a job in my personal matter. Almost ending the university, I was already in a company.
They already know that there are things that cost me more in my company, so you give them more time to do them
In this company, it has many projects and various types, although it does not require many adaptations, yes Accurate flexibility and adaptive To perform some tasks, “Sometimes it costs me. It is very happy. So I am very happy. I am very happy. I started to grow up. I was also in a program related to cyber security. A year ago I am in the company’s stock management. To other Chopra steria places, take it and separate them. They already know that there are things that cost meSo they give me more time to do them. I had some problems with some classmates once, but a little, really. It was in my previous company. In this company, I must recognize that they are greatly supported by all people’s coordination and diversity … DisabilityIt was appreciated. ”
Confirmed by the exception standard
Auguston knows, for what he says to him Interaction of neuropropromatosis affectedIn it he is president, they are suffering from daily discrimination, especially one of the most characteristic symptoms of neurofbiramatosis Points on brown skin“There are many impacts, and some big ones, and they come to distort the face,” he explains, “The people tell us that they are very discriminating in the company, both in the company, and when they find the job, they feel rejected, and they have a very bad time.”
To end this type of discrimination, after all, Auguston asks Awareness and spread campaigns. They have hesitant Because they think we are not going to work, we will not comply with our work or go to the doctor, in fact, this will be many times the opposite, We are trying to get what other classmates are doing. We try to prove our value because we are evenly valid than those who do not have rare disease or disability. “
To prove it, he himself put himself a role model and calls for the companies to bet on them, “I work. I apply well. I only live with my cat I can live freely. From time to time I need some help and it is true that they have to throw a cable, but who is not? ”
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